I haven’t written in a long time, but Eli’s program continues each day. With the business of school and my children actually wanting to be social, there has been less time to write. You may wonder, what does Eli’s treatment look like right now? Here is a quick rundown:
Some things stay the same, every morning, as soon as he gets up, he takes Claritin (or another anti-histamine), flonase, and then does SLIT treatment. The nature of SLIT means he as to wait for 10 minutes after the medicine to eat his maintenance foods. Right now his maintenance foods include, buckwheat flour, quail egg yolk, denatured donkey milk, almonds, mustard, chia seed, poppy seed, and a rotating mix of pears, pit fruits, apples, coconut milk, soy milk, sunbutter, and peanut butter.
Then he goes to school or we go about our lives. In the afternoon (it has to be spaced at least four hours form the end of finishing his maintenance food), we do dosing. When we dose, we follow a build up plan for the foods we are treating. Right now, he is on a very long (2 cycles so far) build up of macadamia nuts (he started almost 6 months ago and is just now to what would be about ⅛ tsp. Of the nut protein), and sheep’s yogurt.
Macadamia is the first of the dosing foods we’ve tried that he tests as anaphylactic, they have been so careful and measured about it. One thing I really appreciate is that they make gummies for the nut doses, which makes it much easier for us. I’ll put a picture below.
We travel soon to do his yearly labs and to do a couple of food challenges and introductions. We’re both excited because the weather down there is really warming up and we might get to swim in the outdoor pool. We have our favorite places we go now, and plan to do some exploring while we are there, this time for a little bit longer than normal!
And in a new experience, now that we’ve mastered quail egg yolk separation and preparation, we’ve moved on to duck eggs, more on that soon!
You all are doing a great job!! ❤️